Spoonies spend a lot of time at the doctor. I have to go every three months for blood work and follow-up to make sure everything is under control. That’s for non-acute issues. If I get sick in the meantime, I have to go back.
One of the problems I’ve had, and I know other Spoonies have faced the same issue, is that we have to advocate for ourselves. It can take a while to get a diagnosis with something like fibromyalgia or Hashimoto’s. It’s frustrating because we know something is wrong, but we can’t get treated for it. So we stay sick. And we get pissed off. So we go to the internet.
Now, I know that Dr. Google is no substitute for a real medical opinion. However, the internet is a wealth of information, and we can get access to medical research and studies somewhat easily. For a frustrated person, this can be amazing. We’re able to arm ourselves so we can ask our doctors better questions. Let them know that we are invested in our care.
At some point though, the question is how much is too much research? I’ve recently been to have a new issue checked out. I got weird vibes from the radiologist when she went from being chatty and friendly to saying “Your doctor will tell you what it means.” Well, okay.
After meeting with the doctor, who indicated things were mostly fine except for one issue, I went home a touch confused. So I hit the internet. Mostly what I’ve done is make things harder for myself when really all I can do is wait and see what happens further down the road.
I want to be well-informed, but at the same time, I don’t want to worry needlessly. It’s just a rough position to be in.
But, it’s a pretty common part of being a Spoonie.